An IBD Patient-Powered Research Network
IBD Partners (formerly known as CCFA Partners) is an online research network brought to you by the Crohn’s and Colitis Foundation and the University of North Carolina School of Medicine. We bring together inflammatory bowel disease (IBD) patients and researchers in a revolutionary partnership aimed at optimizing treatment of IBD.
We believe that when patients and researchers work together we learn so much more about how to better treat inflammatory bowel diseases (IBD).
Patients understand their own body and disease best and have valuable information to share. We provide a way for researchers to listen to patients about their experiences with IBD. By working together, we can answer the questions that are most important to patients.
15,773
We are now 15,773 patients strong.
300+
There are over 300 IBD researchers involved in our network.
How It Works
1
Patients Propose Research Ideas
Patients come up with insightful research ideas.
We invite you to propose, vote, and discuss research ideas. IBD researchers will review these ideas. Your idea may even lead to a study!
View Research Ideas
Popular Research Ideas
We should compare individuals who manage their disease with medication and those who manage their disease with popular diets in the IBD community, such as SCD, FODMAPS, paleo, etc.
Diet
130
14
I propose a genetics-based investigation that explores why some drugs work for some people but not others.
Genetics
75
3
Patients Complete a Survey Twice a Year
You understand your own body and disease best. We want to know about your experiences with IBD.
You can tell us about your experiences by completing an online survey twice a year.
We will use this health information to answer important questions about IBD.
2
3
Researchers Share What They Learn
Using health data contributed by patient members, IBD Partners researchers will find answers to questions that are most important to you.
We will let you know what is discovered and for which studies your data has been used.
View Published Research
Do you have Crohn's disease or
ulcerative colitis?
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