IBD Patients and Researchers: A Revolutionary Partnership
Welcome to CCFA Partners - a patient powered research network brought to you by the Crohn's & Colitis Foundation of America (CCFA) and the University of North Carolina School of Medicine. CCFA Partners is an internet-based study of patients with Crohn's disease or ulcerative colitis. By filling out a short survey twice a year, patients can have an active role in the research process. But CCFA Partners is more than a survey - you will also have access to tracking tools and a community of thousands to help you manage your own health! You can:
- Participate in groundbreaking research
- Propose, discuss, and vote on research questions and topics
- Connect your mobile health apps to better manage your disease
"This new research model really is a game-changer. For the first time, patients are involved at every step of the way -- from overseeing the research process to being participants in studies. By being involved, I am empowered, and I really believe I am helping to shape the future of IBD."
- Nick, patient
“The CCFA Partners Patient-Powered Research Network is the first step in bringing the patient's voice to the forefront of developing new treatments and tools to help IBD patients achieve their best health and quality of life.”
- Jenny, patient
"I am excited to be involved with CCFA Partners because it is completely focused on patient-reported outcomes. For the first time, we have a study that is asking the questions that patients care about: diet, sleep, fatigue, quality of life. The answers to these questions will allow us to provide better care."
- Dr. Robert Sandler, researcher