IBD Patients and Researchers: A Revolutionary Partnership


Welcome to CCFA Partners - a patient powered research network brought to you by the Crohn's & Colitis Foundation of America (CCFA) and the University of North Carolina School of Medicine. CCFA Partners is an internet-based study of patients with Crohn's disease or ulcerative colitis. By filling out a short survey twice a year, patients can have an active role in the research process. But CCFA Partners is more than a survey - you will also have access to tracking tools and a community of thousands to help you manage your own health! You can:

  • Participate in groundbreaking research
  • Propose, discuss, and vote on research questions and topics
  • Connect your mobile health apps to better manage your disease (Coming soon!)
Join

Already a Member? Sign in.
Are you a researcher? Click Here.
Under age 18? Join CCFA Partners Kids & Teens.


Nick uzl

"This new research model really is a game-changer. For the first time, patients are involved at every step of the way -- from overseeing the research process to being participants in studies. By being involved, I am empowered, and I really believe I am helping to shape the future of IBD."
- Nick, patient

Jessica burris

“By tracking my health with Partners PPRN, I have better control over my Crohn’s Disease than ever before. Plus, I feel great about supporting innovative research that really listens to patients and looks for new ways to find a cure for IBD.”
- Jessica, patient

Robert sandler

"I am excited to be involved with CCFA Partners because it is completely focused on patient-reported outcomes. For the first time, we have a study that is asking the questions that patients care about: diet, sleep, fatigue, quality of life. The answers to these questions will allow us to provide better care."
- Dr. Robert Sandler, researcher



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