IBD Patients and Researchers: A Revolutionary Partnership
Welcome to CCFA Partners - a patient powered research network brought to you by the Crohn's & Colitis Foundation of America (CCFA) and the University of North Carolina School of Medicine. CCFA Partners is an internet-based study of patients with Crohn's disease or ulcerative colitis. By filling out a short survey twice a year, patients can have an active role in the research process. But CCFA Partners is more than a survey - you will also have access to tracking tools and a community of thousands to help you manage your own health! You can:
- Participate in groundbreaking research
- Propose, discuss, and vote on research questions and topics
- Connect your mobile health apps to better manage your disease (Coming soon!)
"This new research model really is a game-changer. For the first time, patients are involved at every step of the way -- from overseeing the research process to being participants in studies. By being involved, I am empowered, and I really believe I am helping to shape the future of IBD."
- Nick, patient
“By tracking my health with Partners PPRN, I have better control over my Crohn’s Disease than ever before. Plus, I feel great about supporting innovative research that really listens to patients and looks for new ways to find a cure for IBD.”
- Jessica, patient
"I am excited to be involved with CCFA Partners because it is completely focused on patient-reported outcomes. For the first time, we have a study that is asking the questions that patients care about: diet, sleep, fatigue, quality of life. The answers to these questions will allow us to provide better care."
- Dr. Robert Sandler, researcher